Welcome to a site that has been created to encourage, enlighten, and inform SJS/TENS patients, their families, friends, medical students, doctors, media and anyone who will listen! This site will help you see that we are just ordinary families........that suddenly and without warning had our lives changed by SJS/TENS.

What is Stevens Johnson Syndrome?

Stevens Johnson Syndrome/Toxic Epidermal Necrolysis is an
adverse drug reaction.
Painful Blistering of the skin and mucous membrane involvement.
In many cases preceded with flu like symptoms and high fever.
As it evolves the skin literally sloughs off.
Ocular involvement includes severe conjunctivas, iritis, palpebral edema, conjunctival and corneal blisters and erosions, and corneal perforation.
Almost any DRUG can cause SJS/TEN, including over the counter drugs. SJS & TEN do not discriminate against anyone! Everyone should be aware of allergic drug reactions.

When Jean, (the founder of http://www.sjsupport.org) was in the hospital with her daughter Julie in 1994, she learned her daughter had SJS. The doctors told her she would never hear of another person with SJS. She has reached around the world with her SJS Support Group, and has sent out hundreds of information packets with information that was not readily available when her daughter Julie was diagnosed with SJS. The SJS Foundation now has a 3 fold brochure. No one should have to search for information while their loved one is fighting to survive SJS. SJS is not as RARE as we were led to believe.

If you are a family member of someone fighting SJS right now there are a couple of things (in my opinion) you want to make sure of...that the possible drug causing the allergy is stopped, and you want to DEMAND for them to start an IVIG. You may also want to check out Dees page on hereto see what he personally recommends. Quick diagnosis and treatment is so important. Many if not most doctors have never seen this and YOU will be the best advocate for your loved one!

There is so much to learn about SJS/TENS and the after affects from it. As victims, we are finding the best way to do this, is to learn from each other and to help get the word out to as many as will listen. So this is another spot for you to do just that. Whether you are a family member, friend, doctor, or victim...we'd love to hear from you! Start a forum....ask questions........upload photos (please tag YOUR name in the tag line) for others to see.......both during and after SJS/TENS.......make your own page on here that we might have hope and learn from each other. If you have helpful sites or information to share this is one of the places to do it...please let me know of any additional sites and blogs that would help to educate, encourage, and uplift others...vent and share.........any way you like!!

Let's try to find out how many people actually HAVE been affected by SJS/TENS!!

May Good Health and a Good New Year be in store for you!!
Cheri
dance@tekstar.com

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