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Stevens Johnson Syndrome
What is Stevens Johnson Syndrome?
Stevens Johnson Syndrome/Toxic Epidermal Necrolysis is an
adverse drug reaction.
Painful Blistering of the skin and mucous membrane involvement.
In many cases preceded with flu like symptoms and high fever.
As it evolves the skin literally sloughs off.
Ocular involvement includes severe conjunctivas, iritis, palpebral edema, conjunctival and corneal blisters and erosions, and corneal perforation.
Almost any DRUG can cause SJS/TEN, including over the counter drugs. SJS & TEN do not discriminate against anyone! Everyone should be aware of allergic drug reactions.
When Jean, (the founder of http://www.sjsupport.org) was in the hospital with her daughter Julie in 1994, she learned her daughter had SJS. The doctors told her she would never hear of another person with SJS. She has reached around the world with her SJS Support Group, and has sent out hundreds of information packets with information that was not readily available when her daughter Julie was diagnosed with SJS. The SJS Foundation now has a 3 fold brochure. No one should have to search for information while their loved one is fighting to survive SJS. SJS is not as RARE as we were led to believe.
If you are a family member of someone fighting SJS right now there are a couple of things (in my opinion) you want to make sure of...that the possible drug causing the allergy is stopped, and you want to DEMAND for them to start an IVIG. You may also want to check out Dees page on hereto see what he personally recommends. Quick diagnosis and treatment is so important. Many if not most doctors have never seen this and YOU will be the best advocate for your loved one!
There is so much to learn about SJS/TENS and the after affects from it. As victims, we are finding the best way to do this, is to learn from each other and to help get the word out to as many as will listen. So this is another spot for you to do just that. Whether you are a family member, friend, doctor, or victim...we'd love to hear from you! Start a forum....ask questions........upload photos for others to see.......both during and after SJS/TENS.......make your own page on here that we might have hope and learn from each other. If you have helpful sites or information to share this is one of the places to do it...please let me know of any additional sites and blogs that would help to educate, encourage, and uplift others...vent and share.........any way you like!!
Let's try to find out how many people actually HAVE been affected by SJS/TENS!!
May Good Health and a Good New Year be in store for you!!
Cheri
dance@tekstar.com
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Latest Activity
Forum
Fox Cities Half Marathon SJS Awareness Team!!!! 3 Replies
Hello Everyone!It has been so long since I have been here! I hope this finds you all in good health and that you are feeling well. I am writing too invite anyone who is interested to join me and a…
Started by Kendra Schmidt in SJS Questions and Answers. Last reply by vicki lown Feb 3.
Another article and an opportunity? 2 Replies
Hi All I have attached an article I spotted in the paper I was reading on the way into work in London last Friday morning. I know it’s a copy of an article in another newspaper that has already be…
Tagged: female, magazine, UK, article, news
Started by Catherine Armstrog in People With Stevens Johnson Syndrome. Last reply by Catherine Armstrog Feb 2.
TENS women needed for article awarness
Dear Sir/Madam, I hope you don’t mind me contacting you like this and that you don’t find this letter too intrusive. However, I read about T.E.N.S and S.J.S and really wanted to get in touch with…
Started by Cheri O'Neill in SJS Questions and Answers Jan 19.
help! do I have SJS? 1 Reply
Hi, I need help. I seriously afraid I have SJS. I am a 23 year old male. I took PROVIGIL(modafinil) which is known to cause SJS earlier this week for 3 days in a row(Sat/Sun/Mon) and developed a mil…
Started by Richard Furr in SJS Questions and Answers. Last reply by Cheri O'Neill Dec. 11, 2009.
SJS family member survivor
My mom is a SJS survivor we're thanking God everyday for this life! Please share your stories with us
Started by Jackie salb in SJS Questions and Answers Nov. 3, 2009.
talked to optamologist 1 Reply
I called our family eye doctor today and talked to him about sjs. He told me he has never seen a case of it but if I needed him he would be glad to see me or just talk to me on the phone. I talked to…
Started by vicki lown in SJS Questions and Answers. Last reply by Cindy McNally Oct. 10, 2009.
reactions in the news
I was reading the local paper and there was an article that was titled "over 400,00 children in hospital ERs with life threatening reacti ons to medications per year." it was from teh associated pres…
Started by vicki lown in SJS Questions and Answers Oct. 3, 2009.
eye problems 5 Replies
I was dx'd with SJS in Feb of this year, and released after 5 days on IV steroids. I didn't have any eye complaints at the time, and the doctors in the hospital never even looked at my eyes. I was tr…
Started by Bean Paulson in SJS Questions and Answers. Last reply by Bean Paulson Sep. 8, 2009.
SJS and the Herpes Simplex Virus 7 Replies
Hi, I just wanted to share my son's experience of SJS. My son, who is now 27, has suffered with coldsores from being a toddler. About four years ago after coming home from a music festival he had a n…
Started by Pam Reilly in SJS Questions and Answers. Last reply by Pam Reilly Sep. 8, 2009.
Just wanted you all to know... 4 Replies
Hello, Everyone! I know that I have not met all of you. There are so many new people and I have only introduced myself to a few of you. I wanted to share with you that I am running a 5k September 19…
Started by Kendra Schmidt in SJS Questions and Answers. Last reply by Elisabeth Aug. 28, 2009.
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